Chronic Fatigue Syndrome, also known as Myalgic Encephalitis (ME) is a complex debilitating condition that affects millions of people worldwide.It is a long term illness affecting various systems in the body, particularly the immune, nervous and endocrine systems.While extreme tiredness is the main symptom, it is more of a disabling fatigue that impacts the quality of life.People with this disorder experience difficulties with completing daily tasks, such as getting out of bed, dressing or making a meal.

Key Symptoms: 

Fatigue seems to be the most prominent symptom of this disorder. It's just one part of a much broader and more complex clinical scenario.

•  Post Exertional Malaise(PEM)- The "Crash" after activity: Unlike normal tiredness after any activity, PEM can occur 12-48 hours after the exertion and can last for days, weeks or longer. Activities as small as brushing or having a conversation can trigger PEM in some patients.
• Incomplete sleep-waking up tired: Patients may have difficulty falling asleep, staying asleep or waking up too early. Some also report vivid dreams, restlessness or night sweats.
• Brain Fog - Mental fatigue & confusion: Cognitive dysfunction often referred to as "Brain Fog" is a disabling symptom that affects the brain's functional capacity to process information and also problems with following conversations, finding words, memory recalls may also arise.
• Orthostatic Intolerance (OI)- Difficulty Standing Upright: OI refers to a group of symptoms that occur when a person is upright (Sitting or Standing) due to blood flow and autonomic nervous system dysfunction.

These include -

1. Dizziness or lightheadedness

2. Palpitations

3. Nausea

4. Fatigue

5. Visual disturbances

Other symptoms of ME are:

•Chronic pain - Widespread and persistent aches

•Sensory sensitivities - Overwhelmed by light, sounds, sights, and smell.

•Immune dysfunction - Always feeling sick

•Digestive issues like bloating, nausea, diarrhea etc.

Treatment and management: 

Currently there is no cure for ME/CFS and treatments primarily focus on symptom management. Like-

Energy management: Learning to pace activities to avoid overexertion is crucial.

Cognitive Behavioral Therapy(CBT): CBT has been used to help patients manage the emotional and psychological impacts of disease.

Sleep Hygiene Education: Monitoring regular sleep and wake times, avoiding screen time and stimulants (caffeine, nicotine) before bed is suggested for better management.

Dietary and Nutritional Support: A well balanced diet can help to manage symptoms and support overall health. Dietary plans should include reduction of inflammation or improving diet gut health.

Physical Therapy: Some patients may benefit from low impact physical therapy though this should be approached cautiously.

Bottom line: 

ME or CFS is a real condition that affects millions of individuals worldwide. While much of the causes remain unknown, the need for more research, awareness and support is rising. By working together let's bring greater visibility, care and recognition that every ME patient deserve.